Friday, April 27, 2012

EXPECTATIONS


It seems inconceivable to me that I just found out
this week that I have cancer.
It seems like I have known it all my life.
Yet no one was more astounded than we were
when the doctor gave us the bad news
at my appointment on Monday.
I thought my ordeal was over and
we would breeze through this
like every other time.

Both the surgeon
and the thyroid cancer specialist
recommend that I do not have surgery at this time
to remove the other half of my thyroid.
The tumor was small; slow growing . . .
There is no way to know if cancer is in the other half.
We could wait and watch
OR if you prefer,
we can treat it aggressively with surgery and
radioactive iodine.
Of course, I chose to wait and watch.
I’m in no mood to go through surgery again.
It’s only been two weeks.
Already I’ve been put on the medicine
we left half my thyroid in to avoid.

You know what my worst nightmare is?
You need a little background to grasp this.
Last week, the chiropractor DeRay and I paid $5,000 each
with promises that he would cure DeRay’s diabetes and
my Hashimoto’s disease,
was arrested and put in jail
for bilking the elderly of money with his scheme
to reverse diabetes
on his program that tends to cheat, exploit,
and endanger both the physical and fiscal health
of elderly patients.
The next day he was released when he posted a $200,000 bond.
Does it seem ironic that he would bail himself out
with the money he stole that put him in jail?

This is my nightmare:
(totally fictional)
Dr. A, the thyroid cancer specialist,
 and Dr. B, the surgeon,
are arrested and put in jail
for bilking elderly people with their exorbitant fees
and for making false promises.
Records show that patients die of thyroid cancer
within six months without aggressive treatment.
Further investigation proves
that neither doctor is board certified 
and each is practicing medicine 
under an assumed name and identity.

They share a cell.

Wednesday, April 25, 2012

The Decision

PROLOGUE:  Monday April 23, 2012

It looks like we made a mistake in deciding to take out only half of my thyroid.  We just got back from my post op visit with the surgeon.  The nodules they went in to take out were benign but a small (.8 cm) malignant tumor was found in other parts of the thyroid.  Now I have to decide if I want to have the other half taken out and then take the radioactive iodine treatment or if I want to wait and watch.  He says they don't treat thyroid cancer as aggressively as they used to.  People used to hear "cancer" and they did everything possible to get rid of it.  Now they have a tendency to just see how things go (considering my age, as he pointed out).  I have an appointment with a thyroid cancer specialist on Wednesday.  We'll make a decision from there.  I'm a little dismayed.  Maybe I should have followed the first doctor's advice and just had the whole thing out the next Tuesday.  Instead I've been messing around for four months and I'm right back from whence I started.
Wednesday, April 25, 2012
It’s not hard to make a decision when you’re talking to the #1 Thyroid Cancer Specialist in Utah; especially when he’s cool, calm, and collected.
The thyroid cancer was not at all where they expected it to be.  It wasn’t in the nodules.  They found it incidentally when taking the suspicious nodules out. 
Thyroid cancer is slow-growing. 
Will it spread?
All cancers spread.  The larger the cancer, the faster it spreads.  Cancers spread at different rates and in different places. 
My classification:  Thyroid Carcinoma with Focal Tall Cell Features, 0.8 CM.
Anything under .5 cm, they definitely do nothing.  Larger, you have an option.  They used to take them all out aggressively because people were scared of cancer but now they are scaling back and waiting.
What are the chances it’s in the other side?
10 to 30% higher risk.
Options:
1.    Take out the other side.  If it is cancerous, be treated with radioactive iodine.
2.    Watch it.  Have an ultrasound every six months for two years at least.  If things change, you can have it out at any time.
If you were to do an autopsy on patients who died of non-cancer related issues (stroke, heart attack, etc.), 30% of them would have cancer cells in their thyroid and didn’t even know it.   They didn’t die from it.
"I wish we had taken the whole thyroid out as originally planned."
"Have no regrets," he advised wisely. 
"All surgeries are a risk.  Thyroid medication is a risk."  At my age, thyroid cancer is less likely to be my cause of death.
"Nevertheless, if you are going to lie awake nights worrying about the cancer, we need to treat it."
I’m ready to get on with living:  Mop the floors, dust, plant the garden, vacuum.  Maybe even cook.  Well, that’s going a little too far.  “When are we going to St. George?”
DeRay doesn’t show it, but he’s been under a lot of stress; not only with me but with apartment related business due to Les going on a mission before things were settled, meeting the deadline on complicated taxes he left until the last minute; broken furnace; problems at the SunRiver property..  He’s calling for a doctor’s appointment at this moment.  His turn.
Art Linkletter, Bette Davis, Groucho Marx, Katharine Hepburn and everyone else were right when they said, Old Age Ain’t for Sissies.
Of course, they're all dead.

Sunday, April 22, 2012

The Endemic


Maybe it’s not an epidemic;
Maybe it’s just an awareness;
But why all of a sudden are
We hearing of all these thyroid nodules
Having to be surgically removed?
In January when I found out I have nodules on my thyroid,
And would have to have surgery,
I learned that my niece Cindy had recently had the surgery.
My brother, Jerry, having serious health issues since October,
Besides having a kidney disease
Was diagnosed with nodules on his thyroid.
Three immediate family all in the same month.
Out in California, my brother, DeLoy, was mending his fence
When his neighbor came over and told him
That she has thyroid cancer and is awaiting surgery.
DeRay’s sister, Clare, has a friend at TOPS
Who had half her thyroid removed--
Biopsy benign--
But when they operated, it was malignant.
She had to go back in and have the other half out;
Now going through cancer treatment.
She’s a Downwinder, being reared in Mesquite.
Aunt Mar called to see how I was doing,
Telling me that her son, Roger, is having his
Thyroid out this week.
Who started this?
Can someone STOP IT?
Immediately!
It’s getting out of hand,
Wouldn’t you say?

Friday, April 13, 2012

Surgery vs a Birthday Party


When we came back from Vegas last time,
I was dreading Ed’s birthday open house.
I had two days to get ready for it.
When we came back this time,
I was dreading surgery.
I had two days to get ready for it.
 I didn’t know which one I dreaded the most.
As it turned out,
surgery won hands down.
        "This is the end of life: 
        The end of life is not to be happy;
        the end of life is not to achieve pleasure and avoid pain;
        the end of life is to live in a sacred way, 
              come what may.”

I wanted to follow the advice of the poet.
I tried.
But is fear living life in a sacred way?
Dread?
Feeling abandoned, forsaken, isolated, desolate?
Hopeless?
Defeated and dejected?

Peace I give unto you.
My peace I give unto you.
Not as the world giveth,
Give I unto you.

I must be courageous, come what may.

Ed and I went swimming the day before surgery.
We went for a trike ride.
Trying to relax and feel comfortable,
I had a sauna and hot tub.

DeRay and I left at 5
to be to the Huntsman Cancer Center by 6 AM.
We decided to let Ed sleep.
I wish we had someone to care for him for one day.
$450 our share for one night in the hospital.
I’ve never had such expensive accommodations.
"That’s a week’s cruise," DeRay pointed out.
On the way down,
we wondered if we could remember
what the doctor looks like.
We have seen him only once.
“All I know is he’s a young guy with a beard,”
DeRay says.
So I’m in the room ready to go into surgery
when I see this hand in a black leather jacket reach for my file.
It’s like slow motion in some mystery thriller
 – then in walks this clean-shaven man.
Gulp.  Who are you?
“It warmed up so I shaved.”
I guessed him to be 28;
DeRay said 35.
He’ll be 41 next week.
Kid.
Somehow we got talking about
why I was having my complete thyroid taken out.
I told him how Dr. Abraham first said I needed it out
then a week later he called
and said we’ll just watch it for six months.
I would have cancelled but Clare’s friend’s biopsy came back benign.
When they did surgery, it was malignant,
so then she had to have a second surgery
and now the iodine treatment for cancer.
Amy said “Ordinarily surgery is the last resort
but when you’re dealing with tumors and cancer,
you don’t take chances.”
He said that usually once the surgery schedule gets set,
they don’t change,
but he has a gut feeling about these things
and he feels OK about just doing half of the thyroid, if possible.
The thyroid regulates too many things in the body
to be artificially replaced.
I’m especially concerned about the serotonin levels – 
a feel good chemical called the happy juices -
basically a happiness potion.
He has two nodules to take out,
one on the left side and a smaller one in the middle.
We agreed that if he couldn’t make that work,
he’d take the entire thyroid out;
when we get the pathology report back
if it’s malignant, I’ll have to have the other side out.
We thought it was worth the risk.
I was very happy when I woke up at 10:35
and they said they only took half of it out.
No medication or anything.
I’m thrilled.
They promised I would have the sorest throat I’d ever had in my life.
They were right.
Still it’s not as painful as stomach surgery;
if I don’t swallow or cough, there really isn’t much pain.
I was a little nauseated all day
but I didn’t require any pain medication.
The nurse says it’s OK to be brave
but your body heals better without the pain
so she talked me into a low dosage.
It sent me over the edge.
I went to pieces.
I was so dizzy I couldn’t manage.
I scared the poor little doctor-to-be to death.
He patted my arm and said,
“We’ll be back.  We’ll be back.  You’ll be fine.”
I never saw him again.
While I was in surgery, DeRay went home to get Ed.
They were waiting for me in the room.
I have a view of blossoming trees, a nice patio
and the hills with a mountain biking/hiking trail that is in constant use.
On the other side,
I would have had an unobstructed view of the entire city
but the mountains and blossoming trees are more my nature and heritage.
DeRay and Ed couldn’t find anything to eat in the cafeteria so at 2,
DeRay took Ed home.
He came back around 5 or 6.
He’s going to be worn out.
Soft diet, which means Jell-O, apple juice, broth – all three meals.
 I love the compression boots they have on my legs
since my head has to be elevated to at least 30%.
I want to take them home.
My knees did not hurt at all.

It’s over.
My throat is sore, my headaches,
I have a pain in my chest;
but I’m alive.
In truth, nothing that I didn’t make up or imagine is wrong with me.

Late in the evening,
the nurse walks around the circle with me.
The windows are like mirrors.
What a shock to see this wobbly funny old woman
with her white hair sticking straight up,
clothed in an ugly hospital gown,
thick blue pressure socks on both legs,
creeping slowly down the hall pushing her IV cart.
Who is that?
My great grandmother?
Someone’s great grandmother?
Funny.
I hope I never get old.
Never.
On my arm besides bands with my name and drug allergies,
there was one that said “Fall risk.”
Everyone, including me, wondered why that was there.
“You look fine to me,” the nurse said.
Finally someone remembered they put it on everyone over age 65.
Am I over 65?
I’ve forgotten completely.
When I went in for Pre-Op, they did an EKG.
“I’ve never had this before.”
“They do it on everyone over 65.”
So, what does that have to do with me?
 At 4:30 AM they came in to take vitals,
“Now go back to sleep.  It’s still early.”
I pictured them going down the hall
terrorizing all the innocent sleeping victims.

Little Fellow (resident) came in at 7
and said I could go home.
He took the drainage tube out.
It was poking in my neck about 4”.
I think they emptied a cup at least 4 times.

We got home about 11.
DeRay could think of nothing to do for me.
I poached myself an egg and went to bed.
I was beginning to feel neglected until Amy got home.
She took such good care of me.
She gave me water, made me tea,
a little left-over soup, mashed potatoes,
airborne, cough drops, ibuprofen, ice pack.
I’m feeling fine.
Well, I don’t want to swallow or cough.
We watched the 3rd Naira series,
which was suspenseful and delightful.

The next morning,
DeRay is stressed out with taxes
and taking care of Les’ business
while he is on his mission.
He was carrying on about something
and I started to cry.
Ed put his arms around me holding me tight,
patting me and saying
“It’s OK.  It’s OK,” until I calmed down.
I almost felt like I was in the arms of Jesus.

DeLoy wrote an email asking how I was doing.
I told him that I would call him on Skype after I had my shower.
“I can't wait to show you how those bandits slit my throat
while I was sleeping!” I wrote him.
(They not only slit my throat; they charged me an arm and a leg.)
DeLoy had called me Monday to showoff his surgery
where they had removed cancer from his forehead.
He wanted me to see it before he took the gauze out
and it was just covered with a band aid.
Verla called everyday.
I made the asparagus soup like she told me for lunch
It was very good.
Lucy called.  Brooke.  Lana Gale called.
Aunt Mar and Aunt Olive called.
Amy made a good soup when she got home.
DeRay spent the day in Ogden moving out of Les’ office
and turning the keys over to the new owner.
Amy found another delightful movie to watch.
Bless her.
By Friday, I’m already feeling fine.
I have to wait a week for the pathology report
and I can’t swim but, hey, I’m feeling very blessed,
come what may.

Las Vegas, the Grand Illusion


Everything in this town is an illusion:
A replica
A reproduction of someone, something, or someplace else
Un-authentic
Lights.  Special effects.  Fountains.
Ceilings in malls painted like the sky on a cloudy day.
Moving sidewalks, outdoor escalators,
Bridges over busy streets.
Some things are for real.  On a bridge.
Most all grandiose.
Grander than grandiose.
Larger than life.
Overwhelming.  Stimulating.
False.
Fake.

Harrah's Las Vegas is proud to be the new home of Legends in Concert, the longest running celebrity tribute show in the world and the second longest running show in Vegas.  Featuring live re-creations of superstars of yesterday and today and backed by a live orchestra and dancers, "Legends in Concert" is a true entertainment spectacle for all ages. The fast-paced show features singer-dancers, a live band, and an all-around spectacular full-stage production. The producers of Legends in Concert are careful to cast performers who capture not only the sound of the artist they are portraying but also their look and feel.  Fantastic impersonations of the hottest stars of today!

Dean Martin was the emcee the night Amy took Eddy and me to the show.  We had our picture taken with Elvis Presley.  When we told him we were from Utah, he said he was in Sandy at 10 that very morning.  “Was it snowing?” we asked.  He said, “No, but it snowed two days ago.” (While we basked in the warm sun by the pool each day.)  I thought maybe he was from Utah but I read his bio that he was born in Ireland.  He was good.  We also saw Lady Gaga, Celine Dion, and Michael Jackson, whose dancing and nimble feet were worth the price of the ticket (especially since Amy paid).
Amy didn’t want to go see Phantom of the Opera so she picked a show she thought Ed would like.  When Amy reserved the tickets, DeRay made a big fuss about how he’d drive us and hang around until it was over to take us back to the condo.  “I’ll bet Jerry (Aunt Clare’s son her same age) drives all over Vegas by himself,” Amy mumbles.  As it turned out, it was Clare’s TOPS night and she invited DeRay to go with her.  Suddenly, we were quite capable of going on our own. Amy drove superbly.
Watching “The Legends Show” gave me my first impression that the whole city is an impersonation:  things, people, places.  Why would you want to be somebody else night after night after night?  Wouldn’t you forget your own identity?  Why would we want to be somewhere we’re not?
Holland
 


Gondolier on the Canal in Venice
Paris
Egypt


New York New York
A jelly bean replica of the replica of the Statue of Liberty

Amy walking over the Brooklyn Bridge
 Everything is a production; staged.
Teasing and tantalizing.
 Stimulating.
And we don’t even gamble, drink,
or patronize the casinos.
Brooke, Elizabeth, and family spent
The week in the condo we stayed in last time.
We met them on Monday,
Karlton’s 9th birthday
For the “free” Popovich show
(compliments of Jerry who is his friend).
For some reason no one understands,
It cost DeRay $110 for the free tickets.
We were all there.
What could we do?
DeRay, Ed, Jeanette, Brooke, Karlton, Elizabeth, Isaak, Brigitte at Planet Hollywood.
 The next night, they came to our condo
For pizza and salad then
Brooke, Elizabeth, DeRay & I
Chauffeured by capable Clare
Went to Phantom of the Opera.
DeRay, Jeanette, Brooke, & Elizabeth at Phantom of the Opera

DeRay & Clare in the Opera House
 I sometimes think
Phantom was more special effects
and amazingly spectacular
Than piercing musical lucidity.
All day, Ed kept saying,
“I can’t believe you’re going without me.”
We didn’t know until we watched the movie
The next day
That Ed had every song memorized.
The kids were supposed to play games
While we were gone.
Instead they all watched the same Disney Channel
In four separate rooms.
Maybe they needed their space for awhile.
After they left,
DeRay, Clare, Amy & I
Played Pinochle until 3 AM.
Was that Utah or Nevada time?
Fun filler.
Amy’s champ.
Whoever she was partner with, won hands down.
Pure luck.
On the bridge. Apex of the arch.

Amy & I walked across the bridge and back.
 Thursday we went to the Dam
And took a Ferry Boat ride.

Ed’s absolute favorite.
We scanned the hills for Longhorn Sheep
Then saw five crossing a canal next to a subdivision
As we drove back into Bolder City.
OK, this is Silverton. Can't fool you.
Live Longhorn Sheep, Zion's National Park 2009
Returning to St. George from Class Reunion in Orderville 2009
I have never believed in Mermaids.
I thought they were mythical
But we spent one afternoon
After the movie Mirror Mirror
Watching with our own eyes
An enchanting mermaid.
Now I believe.
































All is not false;
Families are true.
Good times are heartfelt.
Love surrounds us
Even in the midst
Of  impressive illusions and impersonations.
PS Thank You, Clare, for making our week so much fun!
And Blessed 16th Birthday Brigitte!

Ed looking at the Blog:
"That was sure a fun trip.
The best part was seeing Brooke's family."